#BeyondHAE Youth Produced Podcast
Kobe, Sophia, Cassidy, Zach
lisa@haea.org
Booking Overview
Youth leaders and young community members affected by hereditary angioedema (HAE) share firsthand experiences, advocacy, and resilience. It’s a mission-driven, patient-advocacy platform that also offers sponsors and PR teams a highly authentic voice audience in rare disease awareness.
Metrics
74 episodes, Irregular, 5.0 rating
<1k, Neutral, USA
YouTube: 296 subscribers, Instagram: 2.2k followers
Contact Information
lisa@haea.org
Description
The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you!
Visit www.haea.org for Hereditary Angioedema support, information and resources.
Production Team
Host
Kobe, Sophia, Cassidy, Zach
Categories
Non-Profit, Business, Health & Fitness, Society & Culture, Education
Booking Intelligence
Booking Requirements
medium
Typical Credentials:
Young people affected by hereditary angioedema (HAE) and/or HAEA Youth Leadership Council members; sometimes advocates who can speak to lived experience, community involvement, and awareness efforts.
Required Achievements:
Role in HAEA youth leadership or program participation, Participation in HAEA events/advocacy initiatives, Sharing a patient journey narrative tied to support, resilience, or treatment experience
Recent Guest Discussions
Zach (HAEA Youth Leadership Council member) - Memorable Highlights From HAEA Youth Programs/events In 2025 And Outlook For Future Opportunities, Cassidy (HAEA Youth Leadership Council member) - Memorable Highlights From HAEA Youth Programs/events In 2025 And Outlook For Future Opportunities, Sophia (HAEA Youth Leadership Council member) - Memorable Highlights From HAEA Youth Programs/events In 2025 And Outlook For Future Opportunities
Recent Topics
Hereditary Angioedema, Rare Disease, Patient Advocacy, Healthcare, Treatment, Community, Awareness, Patient Support, Youth Leadership, Advocacy
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