CDKL5 in Color

CDKL5 in Color provides authentic, caregiver-driven storytelling around living with CDKL5. It features real guest interviews with parents/caregivers, making it valuable for PR campaigns focused on rare diseases, pediatric care, and assistive communication tech. Booking is feasible for brands aligned with caregiver support, patient advocacy, and family education, with guest opportunities through direct outreach.

27 episodes, Irregular, 5.0 rating

<1k, Female, USA

YouTube: 32 subscribers

cdkl5incolor@gmail.com

On the CDKL5 in Color podcast you'll hear co-hosts Marissa &amp; Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a CDKL5 story to share? Get in touch!

Marissa, Amanda

Society & Culture, Health & Fitness, Parenting, Personal Journals

Parent caregiver of a person with CDKL5 deficiency disorder

Personal caregiving experience, CDKL5 advocacy, Public speaking or peer support involvement

Keshia - Keshia's Life With Emani, Rural Life Challenges, Mental Health, Family Resilience, Teresa - Louise's Life With Cdkl5, Independence, Family Impact, Coping

CDKL5 Deficiency Disorder, caregiving, rare epilepsy, family dynamics, mental health, AAC, siblings, advocacy, community, education