CDKL5 in Color
Marissa, Amanda
cdkl5incolor@gmail.com
Booking Overview
Niche, impactful show focused on CDKL5 caregiver experiences. It features occasional external experts (e.g., a scientist) and parent advocates, offering PR-worthy human-interest angles and science-informed perspectives for health and research audiences.
Metrics
30 episodes, Weekly, 5.0 rating
<1k, Neutral, USA
YouTube: 32 subscribers
Contact Information
cdkl5incolor@gmail.com, amanda@cdkl5incolor.com
Description
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights.
Our goal? To weave a tapestry of vibrant community stories.
Have a CDKL5 story to share? Get in touch!
Production Team
Host
Marissa, Amanda
Categories
Society & Culture, Health & Fitness, Parenting, Personal Journals
Booking Intelligence
Booking Requirements
high
Typical Credentials:
CDKL5 experts, researchers, or affected families
Required Achievements:
personal lived experience in CDKL5 caregiving, researchers contributing to CDKL5 understanding, public-facing science communication
Recent Guest Discussions
Anna - Life With Addy, Caregiving Challenges, Peer Support, Ben Goult - Cdkl5 Science, Talin Connection To Cdkl5
Recent Topics
CDKL5, epilepsy, caregiver support, CDKL5 Deficiency Disorder, research, science communication, community stories, VNS surgery, Ganaxolone, eBook
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